Ressources

External Resources & Information

Everyone navigates a life-altering diagnosis like a brain tumor in their own personal way. One person may want to gather every piece of information available, while another prefers distraction.

Because of this, there is no "one-size-fits-all" list of helpful resources. However, we have put together a short selection of external support offerings, information hubs, and media that you might find helpful:

1. Support & Information Resources

• Deutsche Hirntumorhilfe (German Brain Tumor Association)

https://www.hirntumorhilfe.org/

• • Offers include: A phone information service, scientifically sound yet accessible patient magazines (brainstorm), and an annual Brain Tumor Information Day.

• Cancer Information Service (KID) at the German Cancer Research Center (DKFZ) Heidelberg www.krebsinformationsdienst.de/hirntumor

  • Offers include: A free medical phone helpline (0800 - 420 30 40) and an extremely detailed online portal specifically dedicated to brain tumors, covering topics such as neuropsychological impacts and daily life.

• Yes We Can!cer https://yescon.org/hd/hirntumoren/

  • Offers include: A free app connecting cancer patients and loved ones to chat and support each other, as well as YES!CON—Germany's largest digital and in-person cancer convention.

2. Media & Personal Stories

• Book: Anja Walczak: Feinde in meinem Kopf – Eine wahre Geschichte, die Mut macht (En: Enemies in My Head – A True Story of Courage)

ISBN-13: 9783485028783 / ISBN-10: 3485028789

• Article: Shock diagnosis brain tumor: How Dominik Rettig has been living with cancer for 20 years (WAZ) Read the article on WAZ

• Documentary: Aljona (26) lives with a brain tumor | TRU DOKU (YouTube)

Watch on YouTube

• Personal Story: Inez shares a brief glimpse into family life | The New York Times

Read on The New York Times